Sick, sick and more sick

Sorry I haven't been able to update the blog in awhile. I've been superrr busy with Kaleo. Last Thursday his teacher called me and said that he wasn't acting like his usual self. He was very lethargic all day and did not want to participate. When he came home from school he quickly fell asleep ....that was the flashing neon sign letting me know that he really was sick. On Friday I took him to the doctor with a fever, vomiting and diarrhea. I was told to just give him a few days. I took him to the ER Sunday night because his fever was very high and since he was hardly drinking anything, if he did it would quickly come back up and I have to dissolve his seizure meds in his drink. I was very worried about him having a breakthrough seizure. They told me that it was a stomach virus and give it a few days.

On Wednesday he was exactly the same no improvement. So I took him back to his doctor.  They immediately gave him an IV since it had been days since he had eaten or drank anything. Thankfully two bags of fluids later he was feeling better!!

       

On Saturday we went to his special needs music, dance and art classes. He had a rough time in the beginning. He kept saying " I'm scared of the gym" but I was able to coax him into the room. He grabbed his dinosaur and was able to attend the classes. He pretty much would roar whenever he was asked a question ( that's his go to move whenever he's anxious. He roars like the dinosaurs he's so obsessed with) but he participated!!!

Coincidentally that same day was the annual Make 'm Smile event hosted by Nathaniel's Hope. We would attend every year and it was always a great time. This year we are not there. I feel sad that we missed out on such a special event. Times like these I wish we hadn't left Florida but there's so many reasons why NYC is better for us. I just miss attending events such as Make 'M Smile and the Autism Speaks walk. NYC had a AS walk but it was in Queens and commuting is not as easy as it would've been for us in Orlando. I could quickly jump in our car and drive to wherever I had to go but in NYC Kaleo is not used to taking the trains. Cab service can be pretty expensive. Hopefully we will find some event similar to these in the city.