Leilani finished school and is officially on summer break. She started swimming class this week and is really enjoying it. Kaleo has year round school, so he won't be done until mid-August...then he gets a two week break. Hoping to be able to surprise the kids with a little vacation during that time...but that's still up in the air.
Kaleo's medical appointments are still as plentiful as ever. His seizure meds were increased a couple of weeks ago. Hoping to get to the correct dosage to control his seizures. Another 24 hr EEG will be repeated in August. They are trying to figure out if his Arachnoid brain cyst is in anyway related to his seizures.
The white area at the rear of the skull is the cyst
Another view..it's the black area at the base of the skull.
We did not know about this cyst up until a year ago. It's something Kaleo was born with and the doctors feel that it was caused by a stroke that he must've had in utero. It's just another thing added to his ever growing list of medical issues.
On Monday he went to see his orthopedic doc. He decided on three more months of using the AFOs and then surgery. Luckily, wearing his leg braces as not been an issue at all..he actually really enjoys wearing his "superhero legs" as he calls them. He says they give him super powers. He says the same about his medical alert bracelet. Although sometimes he gets overwhelmed and at those times he will say to take off his superpowers because they're too strong.
As always we continue to take one day at a time and enjoy all the beautiful unpredictable moments.
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